In April, she found the one doctor in our state who would take on such a surgery. We were able to get an appointment for mid-May. At every appointment, we held our breaths, expecting to hear that he couldn't do it.
Spotlight on Stigma... Welcomed but Not Accepted
Wednesday, December 31, 2025
On the Cusp of Another Year - New Year's Eve 2025 (aka: What I Thought Would be "My Year" Did NOT End Up that Way)
In April, she found the one doctor in our state who would take on such a surgery. We were able to get an appointment for mid-May. At every appointment, we held our breaths, expecting to hear that he couldn't do it.
Wednesday, November 5, 2025
Depression, Anxiety, Mental Health... Do Bible Verses Help?
I’m at our weekly prayer time at my church. The person who did the devotion spoke about mental health. I’m not discounting her experience, but I believe differently. The advice she gave for those who are struggling is to reach out to others, to start back on an old hobby or start a new one, or to go to a Christian counselor.
While those are good things, the very definition of depression (or at least major depressive disorder) is that you can’t do those things. There have been many medical studies of the brain that show that the areas that make a person have the ability to do those things are messed up, smaller than they should be. It is literally pretty much impossible to help yourself out of a true mental health depression state.
Now I’m not saying that God can’t work. He can heal. He can heal the brain (something I have never thought about until I was typing the words right now). Support from others can be a major part of that healing.
But the person who needs the healing can’t reach out. It’s up to the Church to do the reaching out. It’s up to the Church to pray for those who need help. It’s up to the Church to encourage hobbies by inviting a person who is struggling to come with them.
As I write this, I’m in an “up” cycle of the bipolar disorder I still deal with. I’ve been awake since 12:30am, and while I might get tired later, I’m not at all tired now. I’m fully of “ready-to-go.” I couldn't have slept if someone bribed me with a huge sum of money in the wee hours this morning.
I don’t know if the person who spoke deals with chronic mental illness. Maybe she said mental health and I translated it as mental illness. With mental health issues, maybe the advice she gave will work.
Even if that’s what happened, the problem is that many others might do what I did - mix-up the terms. At the end of her devotion, she shared several scriptures about not being afraid, not being anxious, etc. I’m not saying the scriptures aren’t true, but it’s just… not… that… easy… If it was, I wouldn’t have struggled for the majority of my life with these issues. My husband wouldn’t be so depressed that he can’t look for a job. There wouldn’t be a need for psychiatrists and medicine and licensed counselors.
And there is. There always will be. Because putting the healing on the sick person isn’t what will heal them. God, through the work of the Body, is the only thing that will.
Monday, September 15, 2025
Waiting
Waiting is something everyone has to do, from the time of birth to the time of death. Sometimes waiting is predictable - like waiting for your birthday or Christmas to arrive. Other times it's unpredictable - like waiting for customer service to pick up. Sometimes it's over a long span of time - like graduating college. Other times it's short - like waiting in line at a fast food restaurant.
But having to wait is inevitable, occurring hundreds of times each day.
Right now I'm waiting to find out the options available for my mother upon discharge from the hospital, which could happen as early as today.
In an ideal world, going home would be the top choice, but she's really weak from fighting a post-surgery infection and I'm really weak from trying to take care of her while still managing the rest of my life. I don't know that she can come home and stay safe because there just aren't enough people who can take care of her at the moment.
I have plans this week - doctor appointments, church groups, and work - that I need to adjust depending on what options we have and what we decide. It's the uncertainty... the knowing that what I can do depends on information I don't have yet... that's killing me right now. I just want to have enough information so I can work out plans for the rest of the week.
But I can't.
All I can do is continue to wait.
Saturday, September 13, 2025
Caregiving is HARD! (Especially When the Caregiver has Physical and Emotional Issues Already)
I've been a partial caregiver for my parents for years. However, the majority of that time, they were mostly independent, sometimes to their detriment. (Doing too much led to some of the issues we are facing today.) The only time I was really called upon to help in everyday life was for small things, like helping my dad put on his diabetes monitor or assisting mom with hard to reach zippers.
The times they needed more extensive help were after each of their many hospital visits. I was usually the one who spent the most time at the hospital, arranged follow-up doctor appointments, helped to fill out paperwork, etc. I have three brothers who were involved, but when they came to the hospital, they sat and visited instead of really helping with their care - and when each of my parents was discharged, a lot of the care fell on me since we all lived together.
After my dad passed a year and a half ago, I've had to do more and more for my mom in everyday life, but she has still been pretty independent. I suspected that this latest surgery my mom had would lead to doing much more than what I've needed to do before, but there was a part of me that hoped I was overreacting.
It turns out I was right.
In fact, it was worse than I imagined.
As much as we love and are thankful for the doctors who did the very involved surgeries she needed, they didn't help with the reality of recovery. In fact, they didn't mention what the recovery would be like at all. But I don't blame them... I really think a surgery this rare has never been done before on a woman of my mother's age. No one knew what would happen.
Let me explain what the past two months have been like - and what surgeries I'm talking about.
It all started on June 5th. After hearing about this one-of-a-kind doctor, we had to wait a couple of months for this date to come. Mom and I were collectively holding our breath, thinking at any minute that he would say the surgery was too dangerous, too complicated, just too much for an 87-year-old with all of her physical issues.
It turned out that she was seeing the only doctor in Alabama who would even discuss doing this kind of surgery on her.
Backstory: My mom had crushed her elbow in a fall when she was 6-years-old. She found out about elbow replacements in her 50's. Still somewhat rare then, this replacement had gone well... at first.
Then it broke.
In 2014, she had a second elbow replacement, with a surgeon at the time who was the only one who would attempt that procedure. The surgery went well but he told her after her recovery that if something happened to it, there was nothing that could be done. There was too little bone left to attach the prosthesis to in the future.
Early this year, she fell and broke it again. She went for months dealing with horrible pain because she thought there was nothing that could be done. That is, until she found Dr. Smith at UAB and made that wonderful June 5th appointment.
Dr. Smith laid it all out. He admitted that he wasn't sure how to do it but he had several ideas in mind. He explained the options and after scheduling a follow-up visit, he told us that he would use the time until that appointment to talk to some of his colleagues around the country and get their input.
There were several ups and downs between that visit and the first surgery but we made it. We were told she would need to spend one or two nights in the hospital before going home. I told them I thought we'd probably stay at least three.
I was right.
But what was really disappointing was that it wasn't even a longer stay because the surgery was more complex than they thought. Well, actually it was more complex than they thought. Much, much more complex. So much so that they decided they had to do it in two stages.
In the first - that initial surgery - they would take out all of the old elbow replacement hardware. Then, at some point in the future, they would put in a total shoulder/humerus/elbow replacement. Where the first surgery was a couple of hours, the second would be much, much longer... ending up with her being about 8-9 hours under anesthesia.
This time they said she would stay in the hospital two or three days. I said it would be longer.
I was right - again.
She was in the hospital and then a rehab hospital for 20, yes 2...0 days. I stayed with her in the hospital every day and night, only going home twice to take a shower. Though I didn't spend the night, I stayed with her in the rehab hospital all day, every day, with the exception of one right before she went home.
It was exhausting. It was draining. It was HARD.
However, it was nothing compared to when she finally got home.
My mom has a condition called ulcerative colitis. In her case, it causes diarrhea and makes her need to go to the bathroom often and very quickly after eating. In other words, she often didn't make it.
Furthermore, did I mention that the surgery was done on the arm of her dominant hand? She had no use of her right arm and hand at first, due to major swelling and not being able to move her shoulder at all. Plus, it was difficult for her to use her left arm/hand.
I'm not a very patient or selfless person. I was a teacher - not a nurse. Teachers need these traits but it's totally different. However, I love my mom and would do anything for her. I tried to make myself become what I needed to be to take care of her.
Have I said it was HARD?
I'm sure it's hard on anyone, but you add back pain, anxiety issues, bipolar swings, auto-immune flare-ups and other similiar things to the mix, and it's HARD.
But I did it - somehow. Still, I'll be soooo glad when she's able to be somewhat independent again.
Friday, August 1, 2025
Happy Birthday, Jack
Last fall my sponsor, mentor and one of my best friends passed away. Today was his birthday. We hardly ever celebrated each others' birthdays on the actual days but we always tried our best to celebrate them in some fashion.
The main way we would mark the occasion was to eat either Chinese buffet or Japanese steakhouse meals. It was a special treat and a fun way to spend time together, especially when we went to a Japanese steakhouse and had them cook it in front of us.
This morning I looked at my calendar and saw his birthday at the top of my items listed for the day. It's the first birthday in about seven years where I didn't at the very least get to call him and wish him a happy birthday.
As we are both Christians, my hope is that this is the best birthday he's ever had - one where he's not in pain, where he's not dealing with his addiction that so affected his life, where he's not living alone in a house he had a hard time taking care of as he grew older.
But I've been mourning all day. I miss him incredibly. My husband and I went to a Chinese buffet and ate in his memory. It wasn't the same, of course.
So... happy birthday, Jack. I'm so thankful that you were a part of my life. I miss you.
I love you, big brother!
Tuesday, July 29, 2025
Being Part of the "Sandwich Generation" is Hitting a New Level
I'm 57 years old. My mother was 30 when she had me and I was 31 when I had my daughter. So we weren't exactly "young'uns" when we each had our daughters.
If you haven't done the math, that makes my mom 87 and my daughter 26. Previous blogs have chronicled the health issues my mom has as well as some of the mental and physical issues my daughter has. I've also recently written a lot about my daughter's move back home.
For those new to this blog, the short version is that four people live in this house - my mother, my husband, my daughter and me. ALL of us have auto-immune disorders, mental health issues, financial struggles, and strong personalities.
Let me sum up some of the extra challenges I have during this phase of my life.
For most in my age bracket whose parents and/or children still live with them, it's their house. In my case, it's my mom's. I went through a major job loss and career change not quite a decade ago and in the process, I sold my home and moved myself and my daughter in with my parents (my dad was still alive at the time).
It's a very nice home... it's in an upscale community, with a total of 4 bedrooms, 3.5 baths, a kitchen, dining room, a garage, and two attic spaces right off the 2nd floor (so no pull-down ladder). I'm thankful for that.
However... the only space that's "mine" is an upstairs bedroom (and I sometimes still have difficulty with stairs, even though overall I'm losing weight and getting stronger) and a study full of what my husband and I need for our photography/writing business.
Previously, I had 3 rooms - a den/kitchenette (so my husband and I could have some things of our own and not in my parents' kitchen), plus the bedroom and study. We had to move the couch from the den to the bedroom and the apartment fridge into the study, so our already cramped space became even more cramped.
Here's the real fun right now... my daughter has 4 cats. She won't let them go outside unless they are confined because she has some big anxiety issues about them getting hurt. There is absolutely no space in her bedroom to have a litter box, so we built a "catio" outside her window with a cat door as access. This space has space for them to play, sunbathe, and use the gigantic litter box we included.
Her bedroom and our study are connected by a small foyer with a bathroom in between the two rooms. We have double swinging doors at the entrance of this area.
I have one cat who goes outside as she pleases through a cat door in the living room window. This means my daughter's cats can't go out into the main house because they might use the cat door to go out. So, to give her cats room to run, each night my daughter lets them out of her room, locking the double doors with a barn door lock.
This means during those hours, I have to fight my way into and out of my study to make sure none of her four escape. I can't just go in and grab a drink from my fridge or work in the wee hours of the morning (my favorite time to work) because of them. It's been a BIG adjustment.
Before I go on, I want to emphasize that I'm thankful she's here. She was in a toxic relationship and she needed time to heal. Our relationship is better than it's ever been with her here again. With my mom's surgery, it's nice to have someone else in the house to take care of her when needed.
But that doesn't make it less difficult.
So, going on... my mom just had surgery. When she was a child, she broke her elbow, which never healed properly. About 10 years ago, she finally had an elbow replacement. Then she injured it again - and needed a second elbow replacement. This was rarely done (at least then) and they told her nothing could be done if it was injured a third time.
Well, she fell on her shoulder - where the rod was attached. The rod came out of her humerus bone, causing her a lot of pain. She was still able to use that hand (her dominant hand) and had partial use of her arm but the pain made her seek out help.
She finally found a doctor who would tackle this complicated and risky surgery - the only one in our state that would. We both held our breath every time his office called or we had to go in for an appointment, thinking that at any point he would say it couldn't be done.
We were wrong. It was done.
However, when the surgeon got in there to fix it, he said that the old hardware was "rattling around." None of the several options he had planned on were able to be completed within that one surgery. Any additional time under anesthesia could be fatal (and I'm not being dramatic.)
Midway through the surgery, the doctor called for a conference with my brothers and me to tell us the news - and to ask our permission to do the plan he had mentioned briefly but never really thought he'd have to do.
The only real option was to do the procedure in stages... the first being the surgery that day, which meant taking all the old hardware out. Then he wanted to wait about a month for her arm to heal somewhat (they had to cut a bone to get the lower part out) before doing the second surgery.
What none of us had planned on was the impact this change would make. She was supposed to be able to use her arm within a few days of the first surgery. Now she can't use it at all until the second surgery - there's nothing holding her lower arm to her upper arm.
It's the little things that make life so difficult. She can't open a jar of medicine to take a pain pill. She can't carry anything because she had to switch from a rollator walker, one that has a seat that she used to carry items, to a cane. She can't make a cup of coffee in the morning as she can't open the creamer she loves.
Plus, there's so much more that she either struggles with or can't do now.
Currently, my business is practically dead. This is a wonderful thing because she needs someone around all the time, but it means one more month of taking money out of what was supposed to be for retirement.
The hardest thing for me is how I'm always torn. If I'm helping her, I feel I should be working. If I'm working, I feel I should be helping her. I have to arrange for someone to be here when my husband and I are gone to a physical therapy session (the result of when we were rear-ended and my car was totaled) or a doctor's appointment. It's really difficult to go to the YMCA to work out. I've even had to miss church.
This challenge multiplies on the many days my back is hurting. One example is when bending over to help her dress, as there's a lot of strain on my back.
Like I did with my daughter, I also want to emphasize that I'm glad I get to be here for her. The other option would probably be some type of rehab center, an incredibly expensive option where she would be miserable not being able to be at home.
Even though I'm thankful I get to have my daughter back home and I am able to take care of my mother when she needs me, it's just plain ol' hard. I don't know how those of you out there who do this kind of thing with much, much more intensity - like having several children with disabilities, or having both parents going downhill fast, or fostering children who have come out of rough situations - make it.
I guess we all just have to live day by day (sometimes minute by minute) and do the best we can. At least that's what I'm trying to do.
Wednesday, July 16, 2025
An Email to the Pastors of My Church About True Community
(Note that I've changed names in this post - and that it was written during an early morning weekly prayer time where one person shares, then we divide up and pray, and then we pray together. I wrote this during the individual prayer time. Also, it has taken me a while to post it. I wanted to really think about whether it should be posted - and to give those I sent it to time to react. Before you even read it, I want you to know that both of my pastors came to me separately and apologized. They each acknowledged that they dropped the ball on this and they would work on ways to hopefully make this less likely to happen to others in the future.)
On the Cusp of Another Year - New Year's Eve 2025 (aka: What I Thought Would be "My Year" Did NOT End Up that Way)
I keep spreadsheets for work each month where use Google Sheets to list the client's name, how much I made, mileage, when I was paid for...
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I have bipolar disorder, Type 2, which some consider "mild"... but live in my shoes for a few weeks and you'll think it...
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So... I'm working on a document and in it, I'm describing some of the mental health issues I had when I was in my early 20s. I thoug...
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Is there a place for a person who's really hurting at church on Sunday morning? For the last 24 hours or so, I have been hurting really...