Wednesday, August 18, 2021

My Introduction as a Guest Blogger for Blanket Fort Hope

My story began over 50 years ago in Birmingham, AL. An early value that was instilled in me was the importance of church. My first outing after being born was going to church and being enrolled in the “Cradle Roll” at two weeks old. I grew up in a family that was at church just about every time the doors were open.

Though I was raised in an intact, lower-middle-class, Christian family, I had a lot going on. I had several medical conditions that were difficult to diagnose and I had to do a lot of things differently or apart from peers. I was considered gifted academically, which is a blessing, but that also made me different. Then as a teenager, I was diagnosed with anxiety and depression which made it hard to navigate life during those transitioning-to-adulthood years.

I did experience success in my young adult years, graduating top of my class for both my bachelor’s and master’s degrees. But I also experienced a lot of failure – or at least times of major frustration and waiting.

I wanted children badly – a huge desire since I was about 8 years old – but couldn’t get pregnant. After I finally did get pregnant and had a healthy baby girl, my husband left us, eventually getting divorced. I had job challenges, some of them life changing. I was a single mom with very little financial support from my ex-husband. These issues are just the tip of the iceberg.

And my mental and physical health issues didn’t help.

However, one positive outcome from these difficulties has been developing empathy. I recognize that there is no way I can fully comprehend what another has been through and how those experiences have affected them, but I have experienced plenty of pain, heartache, and having things done to me that I didn’t deserve.

I understand what it means to not be understood. I understand what it means to have something or someone you love taken away from you. I understand what it means to be falsely accused. And though I’m a Christian and know in my heart that God is on my side, I understand feeling very alone, without hope, without a future - as there have been many periods of my life where I’ve felt just that way.

Fast-forward to a few years ago. The same God who I knew was on my side proved Himself in an incredible way. After losing a lot of parts of my life dear to me in the state where I lived for 25 years, I moved back home. I had to start over, and I wasn’t sure how and even if I would be able to make it.

You see, one of my dreams has always been to make a career out of photography, a passion of mine since I was a teenager. Another big dream I’ve had is to be a writer. Still another is to learn American Sign Language (ASL). And one more is to be an advocate for others with mental and physical health issues.

However, after that time of loss, I gained something – having the dreams I mentioned earlier happen.

I now do freelance work in photography and writing. I have had almost 150 paid photography sessions and have had published over 100 articles, not counting those in my two blogs, during the past few years. I am in the process of learning ASL and even though it’s slow going, I’m starting to become fluent and hope to be a licensed interpreter one day.

I created a blog called “Spotlight on Stigma” and have had many articles published in an online magazine called “The Mighty” – both of which address the advocacy part of what I hope to do. (You can go to www.NovelPhotos.com to learn more about my work in everything but ASL.)

I found out about Blanket Fort Hope (BFH) through an article I was writing for TAB Media (The Alabama Baptist newspaper and The Baptist Paper). Both Alexa and Justin are so passionate about this cause, it encouraged me to consider volunteering. I offered to BFH both the gifts God gave me for photography and writing and the empathy He provided through my struggles to further this effort.

My desire in being a part is to help spread awareness of what’s happening with trafficking as well as bring up some points that some might not think about concerning others’ problems and pain.

Possibly something I write or a photo I take will cause someone to pause and think about the article/image. Maybe those thoughts from that someone will also lead to supporting those who have never had that kind of care - the survivors of sex trafficking.

And hopefully, if we all work together, living the hope of Christ and showing it to these children and young adults will help these survivors heal.

Wednesday, August 11, 2021

"You Can Do Anything if You Try Hard Enough" is a LIE

With the Olympics just finishing, I hear it even more than usual: "You can do anything if you try hard enough." This is simply not true and it's one of my biggest pet peeves.

I was interviewing a mom whose daughter has a very rare condition with multiple physical and mental impairments and she mentioned this too. She realizes that her daughter can make great strides and do great things but can't "be anything she wants." I love her attitude, because it's just not possible.

When I was young, I first thought about this, ironically, concerning fair employment practices and acting. I knew that an employer was supposed to consider each candidate equally for a position. But how did that work if the part was obviously for a child and the one who wanted it was a senior citizen? In the times we live in, it would be possible to do make-up or CGI to make that elderly person into one much younger, but in most cases, it would be cost-prohibitive... and frankly, unnecessary. 

My daughter is a good example of someone who has a great aptitude to do work that physically she can't do. Yes, I'm biased, but she has incredible potential to be a great cinematographer. She has an eye for unusual angles and knows the psychology of how a certain type of shot makes you feel. 

But she has a condition that makes her extremely sensitive to extremes in temperature, especially heat. You know the phrase, "The mind is willing but the body is weak?" She epitomizes that phrase. She would love to work in film but knows her limits. Working 12 hour days on film sets that range from very hot to very cold is not something she can do. 

Though I believe those with Down Syndrome can do so much more than many give them credit for, it's extremely unlikely that someone with Down Syndrome will ever become a top physicist. Even if it's just the way their education was handled due to our low expectations and not their true capacity, it's just not going to happen.

I'm extremely overweight and have been at least somewhat overweight the majority of my life. Plus, I have Joint Hypermobility Syndrome. I never could have been a top gymnast. Between my loose joints and my weight, I wouldn't have been able to pull off even the most basic skills, much less top-level ones.

Other quick examples of people not being able to do what they really want to do, even if they tried REALLY hard:

- a person who has major visual difficulties wanting to become a pilot;

- a person who is hearing impaired wanting to be a sound engineer;

- a person with type 1 diabetes becoming a dessert critic;

- a paraplegic becoming an Olympic athlete (not the Paralympic Games, the Olympic Games);

- a person with severe heart disease becoming a Triathalon champion;

- a person with scoliosis becoming a weight lifter;

- a person with severe depression becoming a stand-up comic (wait... I know of several - never mind on this one).

I could go on and on with other examples but that's not the point of this post. 

The point is that we need to stop portraying the message that trying hard will lead to success (as society defines it). Instead, we need to focus on helping each person become the best he/she can be, even if that's not "THE best." We also need to encourage those who have a dream to think outside of the box. Maybe the original dream isn't possible, but there may be something similar that is possible and would be just as fulfilling.

Indulge me by letting me share one more personal example. I am 53 and have multiple physical and mental conditions that affect my day-to-day life. I'm also a freelance photographer and writer and would love to be "the best" at what I do. However, I recognize I have limitations and can't "do anything." 

I can't do 12-hour shoots due to no longer having enough stamina. I can't do outdoor shoots in the summer unless they are short and I can have access to something very cold to drink throughout. I can't climb a lot of stairs or jump onto the bumper of a truck (which I did years ago) to get the best angle for a shot. Some days my depression or brain fog is so bad that I can't think well enough to sit at a desk and write. On other days my anxiety is so high I have a hard time editing the photos I took because I keep second-guessing myself.

I would absolutely love to be a photographer who works for one professional sports team,  music group, or performer. But that involves a lot of travel (not a good fit due to my mental issues), a lot of unknowns (not a good fit due to my anxiety), a lot of physical work (not a good fit due to my stamina). No matter how much I want this kind of job and "try hard" to get it, it's not going to happen.

But some examples of I CAN...

- work towards getting the best angles and shots within a smaller space so I'm not wearing myself out before a photography session is over;

- schedule summer shoots in the morning or evening, try to put off the shoot until cooler weather, or refer them to another photographer;

- write a lot when I'm mentally able so that when I'm not, I'm not behind; 

- unless there's a tight deadline that's not in my control, give my clients a later image delivery date than I would like so that I can wait to edit if I'm not able to do my best on a certain day; 

- set my schedule so that I can take breaks when needed (again, unless there's a tight deadline); 

- ask for help and accommodations if needed - such as a cold drink on a hot day or an extended deadline if possible;

- shoot as many professional sports, concerts, and performers as possible who are in my area so that I can take a day or two to recover if needed.

Sometimes I feel guilty because I can't do everything I'd like to do as a photographer and writer. I would love to be able to run around and get the best photos possible. I would love to be able to sit down and write any time for as long as I want and know that I won't have to re-do it later because it made no sense. 

If you look at my photography and writing you can see that even with these limitations, I do a pretty good job. Is it the best it could possibly be? No. Do I try hard? H*ll, yeah. There's always something I wish I could do better. I'm not making excuses but my physical and mental limitations are a big part of why I can't. 

However, there's so much that "I can."

The message we need to relay is encouragement while being realistic. Though it doesn't fly off the tongue as well, what about this: 

"Find a dream that is within or just beyond your skill set, personality, mental and physical abilities, and work hard to achieve that goal. Know that it's okay if you fall short or need to come up with a different dream but don't give up on yourself. Even if you don't fulfill your dream, your life can be wonderful and meaningful and will be if you don't give up, not on your dream, but on you."

Thursday, August 5, 2021

My Hero - Simone Biles

It's something that very few would do... walk away from something they've prepared their entire life for, something that could easily disappoint an entire nation, something that many wouldn't or couldn't understand.

But Simone Biles did it at this year's Olympic Games. 

According to an article on ESPN.com, Biles said, "Once I came out here [to compete], I was like, 'No, mental is not there, so I just need to let the girls do it and focus on myself."

I applaud her courage. I have a hard time letting my mental health issues get in the way of tasks that could disappoint just one person, much less potentially an entire world of fans. 

Biles hasn't always had it easy or been a star. When she was young, she had a horrible home life until she was adopted by her maternal grandfather and his wife. She was bullied in high school due to her muscular build and was given grief by the public when it was discovered that she has ADHD. She admitted being one of the 100+ girls abused by Larry Nassar.

"Most of you know me as a happy, giggly and energetic girl. But lately... I've felt a bit broken and the more I try to shut off the voice in my head the louder it screams, Biles wrote on her social media (according to a New York Post article).

Those of us who deal with mental health issues can fully understand. Many of us have wanted to withdraw from something because it was hard on us due to our mental health issues, but we were afraid of the repercussions of doing so. We are taught to please others no matter the toll it takes on us. But while many applauded Biles' taking care of herself above the expectations of others, there is another important aspect of this news.

"USA Gymnastics released a statement July 27 declaring the Biles' withdrawal following her vault rotation was due to an unspecified 'medical issue' and she would 'be assessed daily to determine medical clearance for future competitions,'" said the New York Post.

This kind of statement just amplifies the stigma that a medical issue is a valid reason to withdraw, but not that a mental health one is. Most of the time when an athlete has to leave a competition due to a medical issue, that issue is labeled. For example, a basketball player that can't play due to a broken ankle would be listed as such, not as an "unspecified medical issue."

It's possible that Biles or her coach didn't want to specify the reason at the time the statement was released. It's also possible the USA Gymnastics didn't know the actual reason.

But it's much more likely that USA Gymnastics was trying to cover up that it was "only" a mental health issue that caused one of the greatest gymnasts of all time to quit right before a major competition.

And that's wrong.

A symptom like "brain fog" (yes, that's a real thing) can affect performance as much or more than a broken wrist can impact an office worker. However, it's perfectly acceptable for someone to take sick leave for a broken wrist and not be allowed to do so for the auto-immune flare-up that caused brain fog.

An anxiety attack can interfere with a job interview as much as the flu, but if you try to reschedule a job interview due to having an anxiety attack, it's very likely you won't get the job.

Mental health symptoms can be just as debilitating as physical... but so many times we can't admit it when mental health is the real issue.

We have got to continue efforts to normalize that it's okay to withdraw from something because of mental health impairments. We need to recognize that untreated mental health issues can be as deadly as physical health issues, sometimes more so.

We must continue to spotlight the stigmas that affect our daily lives and bring them to light.

Referenced articles:
- https://www.espn.com/olympics/gymnastics/story/_/id/31902290/simone-biles-withdraws-individual-all-competition-tokyo-olympics-focus-mental-health
- https://nypost.com/article/history-of-simone-biles-mental-health-issues/

Wednesday, July 28, 2021

Information Overload

Does anyone else have information overload from the year+ of virtual conferences due to COVID?

Before COVID, I encountered some amazing conferences, workshops, and seminars that I would have loved to take part in. However, travel time, admission fees, and making a commitment well before the event (not knowing if I would need to work) made a natural limitation in the number of events I could participate in.

Then came COVID - and the world went virtual. 

Every group I'm part of started holding those same conferences, workshops, and seminars online. Woo-hoo! That meant no travel time, greatly reduced admission fees, and being able to cancel at the last minute because you would almost always get a recording of the information later. For that matter, it was rare that a cancellation was needed because I had very little work as it was. 

The first few months of this were just short of heaven. I was loading my little information-starved mind by the bucketful. I was going to meetings that were being held worldwide and it was just beautiful to hear viewpoints from many cultures while getting the knowledge I craved.

Then after a few months, it became more difficult to sit through another hour or two of anything, no matter how beneficial, at the same desk where I sat working for hours before and after that time. 

I started multi-tasking to pass the time. I'm a photographer so editing is something I can do while still listening, but it did make it hard to take notes and it made it impossible to pay total attention to the broadcast. But I still did it.

By this time more and more groups were going online and there were groups I had never heard of inviting me to this workshop or that seminar. I assume they got my information from the groups I was already part of. But the topics were so very interesting... so I signed up for more and more events.

Fast forward a few more months... All of this wonderful input that I had been so glad to get previously became too much. I no longer cared about the subjects I previously thought were so fascinating, or at least didn't care enough. I canceled more often, knowing that "one day" I would eventually get around to that compelling knowledge through the emailed recording link.

But I found that there wasn't time for all of the new classes while trying to fit in the ones I missed. I filed them away in my email folders with the hope that in time, I would finally engage, while subconsciously knowing I wouldn't.

At some point - I'm not sure when - I gave up. I didn't even file those emails anymore. I was barely able to make it through the meetings that I really needed to attend online, and found myself missing even some of those. These are meetings that I would drive 30 minutes each way to attend before COVID and now I couldn't make myself sit at my desk in order to attend.

I've thought a lot about why this happened. I'm one of those who needs almost constant input... as a big part of my personality is to be learning, growing, and mastering the world around me. Why did I decide to give up the great opportunities for that easy to obtain input?

My only valid hypothesis at this point is information overload. Even though I pride myself as one who wants to keep learning something new constantly, in practice I guess it doesn't work out that way. The ebb and flow of life - working, running errands, cleaning, cooking, eating, sleeping, etc - naturally limits the flow of new information one can obtain. What I thought was "constant learning" was, in fact, only as free time and opportunity allowed. 

The world came to a place where that free time was more plentiful because I wasn't doing as much as before. Once I had more time for those varied educational opportunities, I found out that my brain didn't need as much new input as I thought. 

I'm hopeful that once the world gets back to "normal" (whatever that is), that leveling aspect of life will return and I will again crave those times of learning something new. I also hope that I can stay balanced enough to be able to enjoy them.

Thursday, July 22, 2021

The Opposite of Addiction

 (Author’s Note: I know there are actual differences in the terms of “abstinence”, “sobriety”, and “recovery”. But for the purpose of this article, I’m lumping the three terms together and using the word “sober/sobriety” to mean any of those three things. Furthermore, this article is based on https://www.huffpost.com/entry/the-real-cause-of-addicti_b_6506936)

 Those of us in addition recovery know it well – the opposite of addiction is sobriety.  This is why almost every addict first showed up at a 12-Step support group – to find a way to quit addictive behavior… to become sober.

 But what if the opposite of addiction isn’t sobriety? If it isn’t, then what is?

 First, a quick background on addiction. This stigma about addiction started with the scientific community, according to www.drugabuse.govIn[RC1]  the 1930s, it was thought that addicts were “morally flawed or lacking in willpower.” Overcoming addiction usually involved punishment or encouraging willpower to break the habit.

 Later research showed that with any addiction, the brain reacts the same way – the pleasure an addiction gets from the addictive substance/behavior increases dopamine much more than in a non-addict’s brain when experiencing the same pleasure.

 This was “proven” by experiments made popular during the “War on Drugs” campaign. In these experiments, rats were put alone in small cages with two bottles of water: one drug-laced and the other plain water. Each rat chose to drink the drug-laced water until it overdosed. This idea was generalized to all addictions.

 But in the ’70s, one scientist, Bruce Alexander, decided to test another theory. His thinking was that, of course, the rats would want drugs… they had nothing else to do. So, he set up a similar experiment with very different conditions.

 He got one huge cage with 20 rats of both genders. He added good food, places to mate and raise young, and stimulating toys and activities. He included the same two bottles of water. What he saw was very different than the results of the first experiment. These rats who had a social outlet and various types of stimulation preferred plain water.

 He theorized that human connection is the opposite of addiction. As the author of this article isn’t a scientist and also doesn’t have time to plow through the many scholarly articles about the implications of this finding, I’ll leave it to you to form your own inferences of how this affects long-term recovery.

I want you to know that this was mind-blowing to me. I know the power of support groups by just seeing the success stories in local support groups I’ve attended. I know that addiction is a disease of isolation – and of course, the opposite of isolation is socialization. I also realize that humans are much, much more complex than rats and that’s why a support group alone won’t bring sobriety. But to see it played out by a bunch of rats blew me away.

 I’ll go out on a limb and say that long-term sobriety won’t ever come without it – this human connection.

 One more quick thing I have learned about the power of being connected…

Estimated rates of PTSD have increased in war veterans from about 5% after WWII to 15-20% for the more recent wars, according to an article titled “U.S. Wars and Post-traumatic Stress Disorder[RC2] .”

 What was the difference?  Though there are many possibilities for this change, at least one speculated difference was that in WWII, the soldiers came home by boat. They had weeks to talk about their experiences with others who understood. However, in modern times, soldiers are home within a day, by plane. They go from a very traumatic situation to regular life without anyone to listen to and empathize with about what they’ve experienced. This lack of being heard very likely made a major difference in their future mental health. 

The takeaway… Put a priority and getting and staying connected. Your recovery may depend on it.                                                 

 [RC2]https://www.sfgate.com/health/article/U-S-wars-and-post-traumatic-stress-disorder-2627010.php

Wednesday, July 21, 2021

Fear and COVID-19 - A Flashback

(Originally written March 17, 2020 and for some reason never got added to this blog.)

It has been a while since I’ve spent time writing. I have been sick, then super busy making up for being sick, then just super busy. My writing has been pushed aside more than once when I really wanted to... because, in this time of such uncertainty, I felt this wasn't being "productive" (with my definition at the moment meaning “do something to make money”). Well, I hit the breaking point just a few minutes ago and it doesn't matter if it's technically "productive" or not, I need to write.

 

The timing has been weird on this one. I'm about to have cataract surgery and due to a test I need to have before the surgery, I have had to go without contacts for a week. Given the nature of my businesses, wearing my old glasses has made it very difficult to do some of my jobs and impossible to do others. 

 

I have known this for a few weeks and have been preparing for the loss of work and income. I was very proactive by making a list of things that I've been putting off for a long time that needed to be done and could be done with less than ideal vision. I knew this would keep me busy and not feeling quite as bad about the loss of income. I actually wasn't anxious during the beginning of the news about COVID-19, maybe because I was already mentally prepared for this downtime.

 

Then COVID-19 hit my immediate area, one of the last states in the country to really be impacted. When I was "just" missing work due to wearing my glasses and recovery from the surgery, I could still make money a few other ways, just not as much. However, because I live with my parents who are very high risk, it's safer for me to stay home. COVID-19 killed that potential for "not as much" work that I was still hoping for during this time.

 

Add to that, I hit a down cycle in my bipolar disorder and have been extremely depressed (bipolar depression – not related to the circumstances around me). Several non-COVID-related hard to deal with issues have happened personally and with some of the people I love. The support groups I rely on have had to cancel (though we were able to pull off a phone conference for one support group last night). 

 

I have figured out that the most difficult issues I'm dealing with right now are the lack of control and uncertainty. I'll talk about each of those separately. 

 

Control... Everyone loves to be in control. Worldwide wars have been fought over control. Marriages have been lost over control. Businesses have fallen apart because of control. Wanting control is a common feature of humanity.

 

But note that control is a defining characteristic of an addict. Trying to control others and the surrounding environment and always failing is one thing that leads to addictive behavior. Not being able to control the addictive behavior leads to shame and a feeling of worthlessness.

 

So, I'm an addict who has major depression and anxiety issues and is a freelancer who can't work for who knows how long. Under these circumstances there is so little I can control.

 

I'm not doing well.

 

Uncertainty... I think we are all programmed to know that we can deal with just about anything for a specified amount of time. When I was still in college, I remember thinking that I could deal with any subject or any professor for just a quarter. If I know that I was going to have a medical procedure or if I was sick, I had at least some idea of how long it would be until I could get back "to normal." 

 

Not knowing how long this pandemic will last, what will happen before it's over, and what will be the aftermath is a huge problem for me. I have lived through some horrible times in my 50+ years and there was always an end. So intellectually I know there will be an end to COVID-19. But the biggest issue is what my life will be like when it's over.

 

For several years now I have been building a photography business - specializing in event photography. I was just starting to build up some momentum in my business. Big events have are obviously being canceled left and right. It's scary to not know if the businesses that host events will still remember me when it's over.

 

Of course, I'm also worried about my parents. I'm worried that they will get sick... and I'm worried that if I leave my house and catch it, it'll be my fault that they got sick. Both my boyfriend and my daughter are high risk so I’m also worried, though not as much, about them getting sick.

 

Surprisingly, I'm not worried at all about me getting sick. For myself, I'm worried about being inconvenienced... specifically with my cataract surgery. Wearing glasses for this week has been truly horrible. If the test is canceled at the last minute, then all that misery will have been for nothing. If the surgery is put off, then it's that much longer before I can get back to work full-time after recovery.

 

I know I’m whining… I know that I’m one of many dealing with all of these issues… I know that there are many others who have it worse off than I do… In this case, though, knowing I’m not alone in how I feel doesn’t matter one bit to help me feel better.

 

The only thing that has made me feel better in this time has been to help others. Setting up the phone support group last night was one of the better times I’ve had the last week. Knowing I was doing something for others kept me out of my head for just a few minutes. It didn’t lift the overwhelming depression I’m feeling but did keep me going for a little longer while I’m in the midst of it.

 

With all of this, there is no better time to recite the Serenity Prayer... and really try to live it. "God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference."

Tuesday, July 6, 2021

Fireworks Thoughts

Independence Day fell on a Sunday this year, so it was extra fun! (Insert loads of sarcasm into those last two words.) Because so many were out of work and school on Monday, we got to be bombarded by the sounds of fireworks for TWO nights, not just one! 

So... 

much... 

fun! 

(Insert even more sarcasm into those three words.)

Our across-the-street neighbors decided to put on a major fireworks show. As I had no idea how long the Sunday night show would last and my boyfriend and I were hanging out playing a puzzle game, I elected to stay inside and didn't watch. The next night, my boyfriend and I were trying to finish a movie so we missed seeing that evening's extravaganza. 

When I say we missed watching and seeing, I want to make it clear that we did NOT miss hearing the fireworks. They sounded like they were literally shooting them right outside of my bedroom window.

I don't like loud noises; I haven't my entire life. As a child, I hated going to the city-wide fireworks show each year. I thought they were beautiful but just couldn't take the volume, especially at the finale'. I spent the entire show with my hands tightly clasped over my ears.

Normally, if this happened in my neighborhood, I would have put on headphones or earbuds and turned the music up. But since I was with my boyfriend and both times we had started something we wanted to finish, I didn't feel comfortable drowning out both the fireworks (a good thing) and him (a bad thing). 

So both nights I endured... clenching my teeth, getting knots in my stomach, jumping at the loudest booms. 

As they lasted much longer than I would have ever expected (who has that much money to spend on fireworks, anyway?), I had plenty of time to think as I prayed for them to be finished.

One thought that was pervasive during both "shows" was how I wanted to be the mean old neighbor who would call the cops. It's technically illegal to shoot fireworks in our small town, but I know many do so anyway. However, there are lots of illegal things that I used to participate in and hated those adults who were too serious for anyone's good. (Don't go too far with that - I'm talking about trespassing to get our only baseball or TP'ing a yard, not stealing a car.)

I decided I wouldn't be that neighbor. I would continue clenching, knotting, and jumping for a little while longer.

Then they kept going. I had more time to think. 

During Sunday night's display, I was thankful for a strange issue - that my cat was at the animal ER. Annabel is very skittish and even jumps up and runs when I sneeze or cough. Though I was very scared that we might lose her as she was very, very sick that morning, I consoled myself with the thought that at least she wouldn't be subjected to this sensory onslaught.

Monday night she was home but wasn't completely well. Earlier in the day I thought about last night's fireworks and was so glad that she had missed them. When the insanity started back  Monday night, I was upset - I wanted to scream and cry at the same time. My little cat was very fragile and I knew this would stress her out even more than her overnight stay in the vet hospital. 

I almost broke my prior night's vow to not be the mean old neighbor when she ran and hid behind the couch. I wanted so much for those kids to stop and I didn't mind if they got in trouble in the process. But I also know how much fun it is for kids to shoot off fireworks and there was a part of me that hated to spoil their fun.

(Besides, it's possible the police wouldn't have helped and I would have still had to endure.)

Both nights' musings led to a very important issue - when does one person asserting their rights trample over another's? On one hand, I had the right to have a quiet evening at home. I had the right to not have to fight a panic attack over something I couldn't control. I had the right for my sweet kitty to not have to stress out so much she couldn't heal.

But those kids also have rights. Leaving out the whole "illegal" part of this, they have the right to have fun as long as they weren't on our property. 

This led to the debate I have within myself multiple times each week - when is it okay to tell another individual that they can't do a particular activity because of how it affects you?

Some examples...

- TV volume: 

I live with my parents. They are at the age that hearing loss is pretty much a given. They watch tv a lot, LOUDLY - shows I don't like and some that particularly annoy me. But is it "fair" for me to ask them to always turn the volume down if it means they can't hear it?

- Dogs:

We have sidewalks in our neighborhood and many of my neighbors have dogs. This means there are dogs in or near our front yard almost every day of the week, multiple times per day. Sometimes these dogs bark at or run towards my cat. I would love for them to not go in front of my house and terrify my anxious cat, but is it "fair" for them to not be able to walk their dogs on the sidewalk in their neighborhood?

- Food:

I am what is called a "supertaster." This means I taste bitter and spicy more aggressively than most. I don't even like black pepper. The bitter aspect isn't usually an issue but there are many times that the food I am eating in a group situation is too spicy for me. But is it "fair" to ask the hosts beforehand for bland food? I mean, it's personal preference, not like a life-threatening allergy.

- Seating:

Being very overweight means seating can be an issue at times. The biggest fear related to this area is that I'll break one of those little wedding chairs or something similar at a gathering of friends and family. I would love to ask that whatever would be appropriate seating for me be used for all of the guests so I don't have to be singled out. But is it "fair" that those hosting have to pay more for seating or have to do more than they typically would have due to one person's needs?

I could go on with more examples but to get to my point... I'm an advocate for helping those who need special accommodations. I'm one of them. I've written several articles about the value of doing so. 

However, every time I request a special accommodation I wonder if it's "fair" to ask. After all, I'll be inconveniencing someone else, even if it's in a tiny way, to get my way. How much should a person with a disability or someone with mental illness or an elderly person be able to ask for before it's too much? 

It's entirely accurate that the fireworks the past two nights were anxiety-producing and could have easily led to a panic attack either or both nights. We had just spent a lot of money taking our cat to the ER, only to possibly have her hurt herself due to the noise. We had numerous reasons to ask them to stop shooting those fireworks.

I'm glad we didn't. 

But the next time I have a dilemma like this, which will I choose? Asserting myself for what I or a loved one needs or keeping in mind that the other person(s) rights are just as important?

There's not a clear answer. There never will be. I just hope that as we keep standing up for the rights of those who need something special to have the best life possible, we don't trample over the rights of everyone else.

Please comment on what you would have done in this situation - would you have called the police or endured? Also consider following this blog, my Facebook pages (SpotlightonStigma and nowNovelPhotos), and my website (www.NovelPhotos.com). Thanks for your support.

Still Waiting... The Long Road to a Loved One Passing Away

From my small sample of those whom I've talked to about this, it seems like a universal feeling. A brief amount of research seems to bac...